About kEDS
Kyphoscoliotic Ehlers-Danlos Syndrome (kEDS) is a rare genetic condition that mainly affects the body’s connective tissue, which gives strength and support to skin, joints, bones, and organs. Today, kEDS affects fewer than 1 in 1,000,000 people worldwide.
So, why are we here? To find the cure.
Our
Mission
Our mission is to create the path toward effective treatments and find a cure for Kyphoscoliotic Ehlers-Danlos Syndrome (kEDS).
We are committed to advancing scientific research, supporting innovative studies, and exploring drug repurposing opportunities to bring hope and real solutions to those living with this ultra-rare condition. Through collaboration, advocacy, and determination, Move for kEDS strives to transform the future of kEDS from uncertainty to possibility.